and it has been until now that we have a different plan. Yes, I am still this side of the grass. I know when it has been too long when I start getting Messenger Messages. I am sorry for not blogging sooner, but honestly, I did not feel like it and why give anymore meh news. My news now is not so happy, but at least it is a plan and I am encouraged by it. As for things since September, a lot of it has been the boys and school. Cooking dinner, picking up groceries, doing chemo, staying home, but being relatively well. I took off a month at Christmas time and enjoyed tasting food and enjoying our cheese plates made with Metropolitan Market Cheese. I still shutter at the price.....half bag of cheese and fixings....$75. Then I go back for a top off and I don't even get a Met Paper Bag to show my worldliness, and it is $45. That is $110 dollars for cheese and a paper bag that I will use over and over again, until it is quite distasteful. Then, I went back to chemo and had a scan and we decided to add in the dreaded pump. I was on the pump before. It didn't make me so sick, but it is on for three days - but wait, I get pneumonia! Which is a double edge sword. One, I get so weak, I cannot carry my own travel oxygen machine. I have found there are some people that are good at carrying something attached to your face and others that are not. My Mom is not.......no lie, she grabs the machine and just starts walking around, I catch up like an ox being lead by a rope and then we checks to see if she locked the doors and turns around on a dime and yanks me back with her. Honestly, an ox would not put up with it. She carries my purse now. The good news is that the pneumonia got me sick enough to qualify for a Covid vaccine. You see Stage Four Cancer IN YOUR LUNGS doesn't qualify as sick enough. So, one shot down and one to go. I have slowly gotten better, but energy and lungs are slow to comply. The boys had to do all the cooking and the was more stressful than I thought it would be for them. Nolan went off on me one night and for like seven minutes told me how horrible I was and how stressed out he was and I was dying, and he is not happy and I could be a much better Mom and I even admit to be a bad Mom. Finally, I told him to stop. BTW - I always said my kids would need lots and lots of therapy.....maybe that I wasn't Mom of the Year, but seriously?!?!? Anyway, it ended well, I stopped being his parent for a bit. Grant was thrilled with that. But then soccer started - outdoor with masks - and all was well again. Funny how exercise and a bit of sunshine will cure almost anything.
So, what is the plan, well, since I had an adverse reaction to chemo when we started the pump, we went back to the drawing board. After talking to my legion of doctors, no one really wanted me or they thought something else may be better or they thought they had already done too much treatment and more would be detrimental. One doc though came up with PDT or Photo Dynamic Therapy. He seems to think that this will give me a little more relief and a longer time period of relief than other forms of treatment. I will probably have to go back into chemo after to clean up or continue, but that will be after scans. Of course, my insurance company is not only diggin' their heals in on PDT, but dropped the scan clinic that I just started to love. Oh well. Just another day in the world of chronic illness! So, what is PDT, well, it seemed to be a lot like Ghostbusters, the original. It is a three day process. On a Monday you go into Infusion just like you were going into chemo. They inject you with this dye. Imagine this is the green slime they shoot to show where the ghost is. Then on Wednesday, I go into surgery and they stick a laser down my throat and try and find the colored masses and laser them out. Imagine this is putting the ghost into the box. And then, quite frankly, I have no idea what happens on Friday because I was comparing the first two days to Ghostbusters, thinking that would be a good movie to watch again, but something does in fact happen on Friday that requires my attendence. Then we scan, and decided if we do it again or there is another coarse of action. Sooooooooo.....my oncologist said, "You know there is an outside chance that we would not have to do chemo after this." I can't even go there. This summer will mark three years of treatment of some sort with few breaks and no long term breaks. So, do I need anything. Thoughts and prayers especially the week of the 29th and probably more on Friday of that week since I have NO IDEA WHAT I AM DOING......but it may be in Ghostbusters.
A lot of people have asked me how my life changed with Covid. Well, honestly, I added a mask. Outside of that I have had to be more vigilant about other people. Early on in my disease people with a cold would cancel lunch with me and I got it. Now, I don't go to lunch because too many people's civil liberties are violated if you ask them to put on a mask.
Final thought: Fourteen years ago in May, I was told that I had one of the most deadliest cancers when found in late stages and then I was told I was Stage Four. I was 37. No family history. I didn't choose it. I prepared for treatment, got a port, and got childcare only to have my children go live with my Mom an Dad while I had the pump on because my kid's doc didn't know what chemicals I would be giving off. I still remember handing my Mom my four month old. I was isolated, sick, weening, and it hurt so much I couldn't move. I drank warm energy drinks (because cold felt like knives going down my throat) to keep up my body mass and I was on so many steroids I would not sleep and think of all the ways I could make the transition of my death easier on my kids and then as quick as those thoughts would leave how I could make the my life easy on them while I lived. If I was told back then, there was a vaccine that was new, past all the CDC test, that would give my kids back to me, and that may cure me or at least weaken my hardship, I would have run to it. You would too.
Hi sweetie- thank you for sharing your status with us. So happy you got past the pnuemonia and really hope the new treatment will go smoothly. Always saying many prayers for you. Hugs to your mama, the boys and Grant.
Love you- Lizette
Thank you for sharing. I too have been diagnosed with stage 4 and lung involvement, so your blog has been great inspiration to me this year learning to navigate this disease as well as a pandemic. Thank you for always emphasizing living, not gloom and doom.
To anonymous......yeah you! I am on Facebook. Contact me if you like,
but always know, I am rooting for you. I have attached my email.
Once again I want to appreciate Dr Ubarlo for helping me with his herbal medicine to cure my herpes. virus completely, I really suffered from this virus for the past 2 yrs, Right now I'm herpes negative after using the herbal medicine Dr Ubarlo sent to me .l give all thanks to God for leading me to Dr Ubarlo was able to cure me completely from herpes virus, Dr Ubarlo you are the best traditional doctor in the world God bless you sir, contact Dr Ubarlo for cure if you have been passing through similar diseases or virus like. herpes. HIV .gastritis. fibroid. etc via Email email@example.com or Whats App contact +2348119508814 God bless you all
The doctors said Herpes virus do not have medical cure because the virus is capable of hiding within the human cells, it remains protected from your immune system. Herpes isn’t a special virus – your immune system has the tools to fight it back. But because it is able to lay dormant in protected cells, your immune system is unable to remove it from your body,But with strong reactive herbal medication is capable of getting rid of the virus gradually and totally from your body without damaging any of your cells,natural herbs kills the virus totally not just reducing the out break. Get natural herbs cure Email DR. VOODOO at firstname.lastname@example.org Add Dr voodoo on whatsApp +2348140120719
I want to write a little testimony about the good work of doctor Ebhota who cured me from Hsv 1 and 2 for just 2 week with his herbal medicine, I never believe I can be normal again and have a good life like others I always regretted the day I got diagnose with the virus, I was lost of hope when my doctor told me there is no cure for it but I keep thinking and thinking about my future, if I can have kids of my own well I am so grateful for my helper who get me cured with his herbal medicine, I go online in search of anything that can help me because I can’t deal with it forever so I found this Dr Ebhota email on a blog of someone who was cured by him I quickly contact him for help and explain all my pain to him, he told me not to worry about it there is cure for real, I never believe until he send me the herbal medicine when I order for it and I have it within 4 days that is how I took the medicine for 2 week and the following week I go for test just to confirm I was 100% cured from this sickness what a miracle in my life I am so happy right now, you can also get in contact with him if you have such sickness through email@example.com and also WhatsApp him +2348089535482.../https://drebhotasolution.wixsite.com/drebhotaherbalhome he can also help with this following sickness DIABETES CURE/EPILESY/HPV/CURE/LUPUS/HEPATITIS
FINALLY FREE FROM HERPES VIRUSI thought my life had nothing to offer anymore because life became meaningless to me because I had Herpes virus, the symptoms became very severe and bold and made my family run from and abandoned me so they won't get infected. I gave up everything, my hope, dreams,vision and job because the doctor told me there's no cure. I consumed so many drugs but they never cured me but hid the symptoms inside me making it worse. I was doing some research online someday when I Came across testimonies of some people of how DR Ebhota cure them from Herpes, I never believed at first and thought it was a joke but later decided to contact him on the details provided and when I messaged him we talked and he sent me his herbal medicine and told me to go for a test after two weeks. Within 7 days of medication the symptoms disappeared and when I went for a test Lo and behold I was NEGATIVE by the Doctor Who tested me earlier. Thank you Dr Ebhota because I forever owe you my life and I'll keep on telling the world about you. If you are going through the same situation worry no more and contact DR Ebhota viadrebhotasolution@gmail. com or WhatsApp him via +2348089535482.he also special on curing 1. HIV/AIDS2. HERPES 3. CANCER 4.ALS 5. HEPATITIS B 6.DIABETES 7. HUMAN PAPILLOMAVIRUS DISEASE(HPV)8. ALZHEIMER 9. LUPUS (Lupus Vulgaris or LupusErythematosus
Life is always beautiful when you are in good health. For almost 4 years I have been with herpes and I was lonely and sad. Fortunately I turned to a good and great doctor. to help me get back to health. completely cured my herpes.Today I am herpes free and very healthy. Many thanks. Dr ubarlo For returning my health. I will always be grateful. Dr ubarlo If you are reading this testimong and you have some kind of illness.(1) hepatitis.(2)cancer.(3) HIV.(4)herpes.(5) fibroids.6) ) (7) Cancer diabetes, you can also contact him on his email address firstname.lastname@example.org or Whatsapp +2348119508814
Post a Comment